Bendy Wendy and the (Almost) Invisible Genetic Syndrome - by Brad T Tinkle & Laurren Darr (Paperback)
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<p/><br></br><p><b> About the Book </b></p></br></br>Making the cheerleading squad is a lifelong dream for Wendy, but then physical issues plague her performance. What's going on? What is the underlying issue? Join Wendy and her family as they find out about Ehlers-Danlos Syndrome / joint hypermobility.<p/><br></br><p><b> Book Synopsis </b></p></br></br><p>Wendy is a perky, vivacious adolescent entering middle school with a lifelong vision of becoming an cheerleader. Wendy has been called bendy by family and friends because she's been limber and flexible throughout her life, earning her the nickname 'Bendy Wendy.'</p><p> </p><p>As soon as she's about to realize her ultimate aspiration of making the cheerleading squad as a flyer, Wendy worries that her dream will be shattered by constant physical issues plaguing her during rigorous practices and performances. </p><p> </p><p>On the outside, Wendy looks perfectly 'normal, ' but clearly something more is going on. Join Wendy and her parents on their journey through a diagnosis and revelations of Ehlers-Danlos Syndrome / joint hypermobility, an 'almost' invisible genetic syndrome. </p><p> </p><p>"Bendy Wendy and the (Almost) Invisible Genetic Syndrome... A story of one tween's diagnosis of Ehlers-Danlos Syndrome / joint hypermobility" was written to fill a need for families, children, and tweens that find themselves in a position of understanding and explaining, in basic terms, Ehlers-Danlos Syndrome and the issues associated with it.</p><p> </p><p>It's been thoughtfully developed by bone and connective tissue disorder expert Dr. Brad T Tinkle and his award-winning children's book author wife, Laurren Darr. For almost a decade, they had dinner-time conversations on how to better serve and reassure children and families affected by Ehlers-Danlos Syndrome / joint hypermobility. "Bendy Wendy and the (Almost) Invisible Genetic Syndrome... A story of one tween's diagnosis of Ehlers-Danlos Syndrome / joint hypermobility" is the culmination of that goal.</p>
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